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Neurology · AAN

Status epilepticus

AAN
A
Source:American Epilepsy Society Guideline: Evidence-Based Treatment of Convulsive Status Epilepticus (2016) and AES Treatments Committee Review on Refractory CSE (2020)ESETT trial (2020)
Verified Apr 2026
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Red Flags

  • Convulsive seizure ≥5 minutes — treat as status epilepticus immediately; do not wait for 30-minute classical definition[2]
  • Persistent altered consciousness after convulsions stop — non-convulsive status; emergent EEG and continued anti-seizure therapy[2]
  • Hypoglycaemia, hyponatraemia, hypoxia, hypotension, or hyperthermia during status — correct concurrent with anti-seizure therapy[2]
  • Refractory CSE (continued seizure after benzodiazepine + adequate second-line ASM) — admit to ICU; anaesthetic agent and continuous EEG[2]

First-line treatment

Interventions

  • Stabilisation pathway[2]
    ABC: airway, oxygen, IV access, monitor; check glucose; start timer; establish whether ≥5 min seizure; lateral position if airway clear
  • Burst suppression on EEG for refractory CSE[2]
    Anaesthetic infusion (midazolam, propofol, or pentobarbital/thiopental) titrated to seizure suppression or burst-suppression for 24–48 hours, then graded weaning under EEG

First-line drug therapy

DrugClassAdultPaediatricNotes
Lorazepam (first-line)[2]Benzodiazepine4 mg IV bolus over 1–2 min; repeat once at 5–10 min if needed0.1 mg/kg IV (max 4 mg per dose)First-line IV benzodiazepine; longer effective duration than diazepam; use IV diazepam 0.15 mg/kg or rectal 0.2 mg/kg if no IV access; intramuscular midazolam 10 mg if no IV
Midazolam (alternative first-line)[2]Benzodiazepine10 mg IM, 10 mg buccal/intranasal, or 0.2 mg/kg IV0.2 mg/kg IM/IV (max 10 mg); buccal 0.5 mg/kg (max 10 mg)Pre-hospital and out-of-hospital first-line where IV access not available; RAMPART trial showed equivalence to IV lorazepam
Levetiracetam (second-line)[2]SV2A modulator60 mg/kg IV (max 4500 mg) over 10 min60 mg/kg IV (max 4500 mg) over 10 minESETT trial — equally effective as fosphenytoin and valproate; preferred for ease of administration, fewer cardiac concerns; renal dose adjustment
Sodium valproate (second-line)[2]Multiple-mechanism ASM40 mg/kg IV (max 3000 mg) over 10 min40 mg/kg IV (max 3000 mg)ESETT trial second-line option; avoid in women of childbearing potential without pregnancy prevention programme; hepatic injury and pancreatitis
Fosphenytoin (second-line)[2]Sodium channel blocker20 mg PE/kg IV (max 1500 mg PE) at ≤150 mg PE/min20 mg PE/kg IV (max 1500 mg PE) at ≤2 mg PE/kg/minCardiac monitoring during infusion; hypotension and bradyarrhythmias; preferred over phenytoin where available (less infusion-site morbidity)
Midazolam infusion (refractory)[2]Benzodiazepine continuous infusion0.2 mg/kg loading then 0.05–2.0 mg/kg/h titrated to EEG burst-suppressionLoading 0.15 mg/kg then 1–10 µg/kg/min titratedFirst-choice anaesthetic agent for refractory CSE; tachyphylaxis common — cycle to propofol or pentobarbital if escalating doses
Propofol infusion (refractory)[2]GABAA agonist anaesthetic1–2 mg/kg IV bolus then 1–10 mg/kg/h titrated to EEG—Avoid prolonged high-dose infusion (>4 mg/kg/h for >48 h) due to PRIS — propofol infusion syndrome (acidosis, rhabdomyolysis, cardiac failure)
Pentobarbital or thiopental (super-refractory)[2]Barbiturate anaestheticPentobarbital 5 mg/kg IV bolus then 0.5–5 mg/kg/h; thiopental 3–5 mg/kg IV bolus then 3–7 mg/kg/h—Super-refractory status; profound hypotension, immunosuppression, ileus; vasopressor support and MDT neuro-ICU care
Lorazepam (first-line)[2]
Benzodiazepine
Adult
4 mg IV bolus over 1–2 min; repeat once at 5–10 min if needed
Paediatric
0.1 mg/kg IV (max 4 mg per dose)
First-line IV benzodiazepine; longer effective duration than diazepam; use IV diazepam 0.15 mg/kg or rectal 0.2 mg/kg if no IV access; intramuscular midazolam 10 mg if no IV
Midazolam (alternative first-line)[2]
Benzodiazepine
Adult
10 mg IM, 10 mg buccal/intranasal, or 0.2 mg/kg IV
Paediatric
0.2 mg/kg IM/IV (max 10 mg); buccal 0.5 mg/kg (max 10 mg)
Pre-hospital and out-of-hospital first-line where IV access not available; RAMPART trial showed equivalence to IV lorazepam
Levetiracetam (second-line)[2]
SV2A modulator
Adult
60 mg/kg IV (max 4500 mg) over 10 min
Paediatric
60 mg/kg IV (max 4500 mg) over 10 min
ESETT trial — equally effective as fosphenytoin and valproate; preferred for ease of administration, fewer cardiac concerns; renal dose adjustment
Sodium valproate (second-line)[2]
Multiple-mechanism ASM
Adult
40 mg/kg IV (max 3000 mg) over 10 min
Paediatric
40 mg/kg IV (max 3000 mg)
ESETT trial second-line option; avoid in women of childbearing potential without pregnancy prevention programme; hepatic injury and pancreatitis
Fosphenytoin (second-line)[2]
Sodium channel blocker
Adult
20 mg PE/kg IV (max 1500 mg PE) at ≤150 mg PE/min
Paediatric
20 mg PE/kg IV (max 1500 mg PE) at ≤2 mg PE/kg/min
Cardiac monitoring during infusion; hypotension and bradyarrhythmias; preferred over phenytoin where available (less infusion-site morbidity)
Midazolam infusion (refractory)[2]
Benzodiazepine continuous infusion
Adult
0.2 mg/kg loading then 0.05–2.0 mg/kg/h titrated to EEG burst-suppression
Paediatric
Loading 0.15 mg/kg then 1–10 µg/kg/min titrated
First-choice anaesthetic agent for refractory CSE; tachyphylaxis common — cycle to propofol or pentobarbital if escalating doses
Propofol infusion (refractory)[2]
GABAA agonist anaesthetic
Adult
1–2 mg/kg IV bolus then 1–10 mg/kg/h titrated to EEG
Paediatric
—
Avoid prolonged high-dose infusion (>4 mg/kg/h for >48 h) due to PRIS — propofol infusion syndrome (acidosis, rhabdomyolysis, cardiac failure)
Pentobarbital or thiopental (super-refractory)[2]
Barbiturate anaesthetic
Adult
Pentobarbital 5 mg/kg IV bolus then 0.5–5 mg/kg/h; thiopental 3–5 mg/kg IV bolus then 3–7 mg/kg/h
Paediatric
—
Super-refractory status; profound hypotension, immunosuppression, ileus; vasopressor support and MDT neuro-ICU care

Safety-net

  1. Family education — convulsive seizure lasting ≥5 minutes is a medical emergency; call ambulance and consider rescue benzodiazepine (buccal midazolam, rectal diazepam) at home if prescribed[2]
  2. After any episode of status epilepticus, see neurology within 1–2 weeks for triggers and ASM optimisation; never stop ASM abruptly[2]
  3. If patient has confusion or unusual behaviour after a seizure stops — non-convulsive status is possible; seek same-day medical review[2]

Referral criteria

  • All convulsive status epilepticusEmergency department; HDU/ICU on persistence[2]
  • Refractory or super-refractory statusNeurology and neurocritical care; consider tertiary transfer[2]
  • New-onset refractory status epilepticus (NORSE) or febrile infection-related epileptic syndrome (FIRES)Tertiary epilepsy / encephalitis centre; immunomodulation (steroids, IVIg, plasma exchange, anakinra, tocilizumab)[2]
  • All survivors of status — outpatient neurology within 1–2 weeksNeurology and ASM optimisation[2]

Clinical summary

Stepwise management of generalised convulsive status epilepticus from first-line benzodiazepine through anaesthetic-induced burst suppression in adults and children.

References

  1. 1.American Epilepsy Society Guideline: Evidence-Based Treatment of Convulsive Status Epilepticus (2016) and AES Treatments Committee Review on Refractory CSE (2020); ESETT trial (2020)
  2. 2.Treatment of Refractory Convulsive Status Epilepticus: A Comprehensive Review by the American Epilepsy Society Treatments Committee. Epilepsy Currents (2020)

On this page

  • Red flags
  • First-line treatment
  • Safety-net
  • Referral
  • References